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The Broken Hip: Caregiving From Afar

Caring for a parent from a distance can be stressful, emotionally and financially


Republished with permission. Click here to explore KERA's THE BROKEN HIP — A KERA News Breakthrough Series.

Barb Smelser is a full-time caregiver, living more than a thousand miles away from her dad.

"I try to talk to my father every day, but he's hard to reach, so that doesn't happen all the time," she says.

Earl Schmalz, a 92-year-old World War II veteran, was living on his own in Dallas — until he fell and broke his hip last year. Now he's sitting in his wheelchair by a window with his daughter in a Dallas nursing home.

"Sweetie, I didn't really want to come here at all," he tells her.

Schmalz starts talking about his service in Germany nearly 70 years ago. His daughter tries to bring him back to the present.

"My preference was to go home, at which point I was told I couldn't unless I had somebody that would be with me on a 24-hour basis," Schmalz explains. "All my kids live out of town.

So I don't have anyone locally that I want living with me. I just wouldn't be comfortable."

(MORE: The Stress of Long Distance Caregiving)



'it just tears you up'

As a daughter, Barb Smelser wants to honor her father's wishes, but she's torn. Her husband has a job in North Carolina. Her father doesn't want to leave Dallas — or hire full-time help at home.

"I know he wants to go home," she says. "But he can't. It just tears you up."

So she travels back and forth for weeks at a time. At home in North Carolina, she manages her dad's finances. It's taken a toll.

"The travel — I don't know how I do it," she says. "It's just hard. You're being pulled in so many different ways. And you have your own life. You almost have a second life. So it's almost like you have several different lives you're running."

There are an estimated 7 million long-distance caretakers like Barb Smelser in the United States.

That number is likely to grow. In Texas, the 60-plus population is expected to rise to more than 8 million people by 2040 — that's almost a 200 percent increase from 2000.

(MORE: What's Your Caregiving IQ?)



'It's really hard to watch an aging parent'

Caregiving is exhausting work.

"There's sleeplessness, there's obesity, there's depression. It's really hard to watch an aging parent not do well," says Cheryl Acres, a nurse and certified geriatric care manager. She helps families through the planning and decision-making that comes with aging and illness.

In addition to adverse health effects associated with caregiving, there can be a serious financial impact.

"People have devastated themselves financially trying to pay for care," she says. "There's millions and millions of dollars lost every year because of that."

Annual expenses incurred by long-distance caregivers averaged nearly $9,000, according to a 2007 report by the National Alliance for Caregiving.

Barb Smelser, who also cared for her mother-in-law before she died, is still learning to take care of herself. She says it's like what a flight attendant says while giving instructions before the plane takes off: When the oxygen mask drops, secure your own before the person next to you.

"You have to take care of yourself because if you don't, you won't be there to take care of the person you're helping," Smelser says. "It's hard to step back and take care of yourself."

Tips for Caregivers

How can caregivers cope? Barb Smelser is an expert — she takes care of her aging father.

  • Talk to every medical person who comes in to care for your loved one — each doctor, nurse and therapist.
  • Don't be afraid to ask lots of questions so that you understand what choices you have, and what decisions you need to make. If you do not understand what the doctor says, keep asking until you understand.
  • Take care of yourself. Pray. Breathe. Remember to take time to eat. Stay hydrated. Take a short walk to get fresh air and perspective.
  • Try to be thankful that medical care is available in the middle of this stressful situation. We no longer live in a time where a hip fracture means an automatic death sentence. Chances are excellent for healing and recovery.
  • Make an unplanned visit. If your family member is spending time in a rehab or nursing facility, stop by for a surprise visit. "It makes a huge difference," Schmalz said. "The people who have somebody going to visit them are not as likely to fall through the cracks."

Resources

Looking to prevent hip fractures? Are you a caregiver who needs help? Here's a listing of resources. Click on the links below.

FALL PREVENTION

HELP FOR CAREGIVERS

WELLNESS AND PHYSICAL HEALTH

AGING IN PLACE

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