New Tech Helps Families Manage Caregiving
These new tools, resources and apps make it easier at home and away
(Editor's note: This article is part of a year-long project about aging well, planning for the changes that aging brings and shaping how society thinks about aging. It appeared previously on PBS NewsHour.)
Every day we get news of remarkable developments in the tech world that claim to make our lives better, easier or more organized.
For families and friends caring at home for ill or frail adults, innovations in health technology promise dramatic changes in the ways health care is delivered.
(MORE: Transforming Life as We Age)
Family caregivers are often responsble for the safety and security of their loved ones, organizing 24-hour care at home, managing complex medication protocols, meals, transportation and more. Many of these tasks can — with an investment in learning and sometimes in a new device — be made easier or more efficient. For caregivers who live far away or who are juggling jobs and care, incorporating certain new technologies into their lives can be particularly helpful and reassuring.
But how to choose the most appropriate app, website or hardware to make these tasks easier without adding stress to their already demanding lives?
Below is a brief overview of technology that can help caregiving families. These options assume that most readers have access to a computer or tablet and/or a smartphone. The goal in using any of these technologies is to find digital products and services that are practical, simple to learn and use, secure, and, ideally, free or low-cost.
Digital health care is a fast-growing field. One of the most straightforward — and valuable — tech developments is the ability to email physicians with questions or symptom reports and receive a response. Your health care practitioner must, of course, be willing to support this and other innovations, like telemedicine.
- Telemedicine - This is an exciting area where video or messaging technologies allow doctors to communicate with and even diagnose patients, but patients don’t have to leave home. The time-saving elements are clear — not to mention avoiding the difficulties of dressing, transporting and guiding someone to and from what may only be a 10-minute medical appointment.
- Chronic care - Digital tools and wearable technology (e.g., watches with sensors) can help in the care of chronic conditions by monitoring symptoms — both for your own benefit and to communicate with your doctor. Apps are available, for example, to monitor blood glucose, blood pressure and other health indicators.
- Health records - Emergency contacts, information on health care and insurance providers, records of over-the-counter medications, prescription history, allergies, health history, medical events, and lab tests can all be kept in one place. There are charts to record blood pressure, blood sugar, cholesterol, heart rate, body temperature, weight, pain level, etc. Some sites or apps include a journal to record daily entries about diet and physical activity. Example: HealthVault.
- Medication management - If used correctly, these devices can help reduce medication errors, a frequent cause of health problems, hospital admissions and emergencies. Alarms can remind users when to take medications, or pill boxes can be locked until the appropriate time. They can send messages telling users which medication to take and when, track missed doses, and provide voice description of a medication and how it should be taken. For someone with multiple medications or who has memory problems from stroke or Alzheimer’s, these devices can be helpful as long as the person understands — and can remember — how they are to be used.
The physical safety and well-being of loved ones is an enormous concern for caregivers. Technology can be helpful in a number of ways to monitor the safety of someone at home, even if you’re not there.
- Fall prevention and response - Every year, one in three adults age 65 and older will fall. Falls are the most common cause of death due to injury in this age group. Some health conditions increase the likelihood of a fall: problems with walking or moving around, medications, foot problems or unsafe footwear, drop in blood pressure when moving from sitting to standing, vision problems and tripping hazards at home. Help is available with fall detectors/sensors, sensor pads and wheelchair alarms. Many people benefit from emergency response systems such as Lifeline, Vital Link and Life Alert.
- Motion detectors - These devices can be as simple as a light turning on when someone enters a room. More complex devices can monitor for activity in a particular area or room of the house. You can arrange to be notified if there has been no activity for a given period of time.
- Webcams- Another type of motion detector in which cameras are set up in different places in the house. You view the webcam to see what someone is doing, e.g., sleeping, watching TV, eating. With some of these devices, keep in mind that privacy issues may need to be addressed.
- Audio monitors - Two-way communication devices, such as baby monitors, allow you to listen to someone from another room, so you can hear if your parent has awakened from sleep, for example, or is ready for a meal, or needs help getting out of bed.
- Wandering/exit-seeking- Door alarms can keep someone from wandering outside. GPS devices can be programmed and personalized, enabling caregivers to link a smartphone to a mobile device installed in a shoe or belt, helping to locate someone if he or she wanders or becomes lost due to severe memory loss.
- Telephone/video check-ins- Available in many communities, volunteers make daily calls to older adults who live alone to be sure they can answer the phone and are OK. Video chatting, using Skype or a similar service, helps you connect with someone if you can’t be there in person.
- Communication aids - Specialized equipment, such as phones with large buttons and enhanced audio, or computers with greatly enlarged type, can help someone with impaired vision or hearing.
Help for Caregivers
There are lots of tools and resourcs to help caregivers save time, find support, relieve stress and take care of routine tasks more easily.
Education & Information - Online caregiver education, support & information are available 24/7 through many organizations and websites. Here are some suggested sites:
Shopping - Even if your care responsibilities only involve shopping or banking/bill-paying for your parent, you’ll save time if you can do it from home. Online prescription refills through stories like WalMart and CVS are also helpful, if that service is available to you. Websites like Buck & Buck, The Alzheimer's Store and Amazon carry specialized clothing, medical equipment, assistive devices, incontinence supplies and more.
Communications, Scheduling & Information-sharing
- E-Calendars - are accessible anywhere via desktop or mobile devices, can alert you to upcoming events or tasks, and are often able to be shared among family members, friends, aides and others who may be involved in care activities.
- Information-sharing sites- allow you to share updates and photos with invited family members and friends who can view and add comments. They also allow you to give permission to someone else to post updates on your behalf, taking this responsibility off of your shoulders.
- Care coordination websites – combine calendars and information-sharing. Websites like LotsHelpingHands and CaringBridge let you share updates with loved ones, keep track of schedules, and invite/schedule others to help out with tasks and appointments.
- Exercise - Care demands often prevent family caregivers from getting enough exercise or sleep, yet these are necessary to stay healthy, both physically and mentally. Several different sites can remind you to exercise, help you track the exercise you’re already doing, and connect with others for support or instruction. Example: American Heart Association’s Online Activity Tracker; online exercise videos through YouTube or Netflix.
- Sleep - Even sleep and relaxation can be helped with tech products. Meditation tools can help you relax before bedtime; apps like Ambiance provide soothing sounds or white noise.
- Entertainment - in addition to an enormous number of games and brain exercises, you can find free movies, music from all eras, old radio programs and other online ways to pass the time and perhaps prompt conversation and engagement with your loved one.
New innovations in technology that can be used in the home are announced every day. Sometimes, however, there seems to be a disconnect between what is offered and what caregivers really need or want. In other instances, a too-steep learning curve makes adoption of programs and apps challenging.
But once they discover effective tech tools and become accustomed to these new products, many caregivers find that their lives are a little easier and their isolation is reduced. Here are some ways to help you fully explore your options and get what you need:
- Search online to read about the kinds of tools you’re interested in before you purchase anything
- Ask friends what websites or apps they find particularly useful.
- Visit a store where they sell electronic devices such as smartphones. Ask a salesperson to guide you in testing the tool. Find out what type of follow-up help and free training they offer.
- Try to find a tech-wise family member, friend, service (or local teenager) to provide assistance should you need it.
Caregiver.org Residential Care Search - Online listings by geographic area
Digital Technology for the Family Caregiver - Types of technology and uses for caregivers
Community Care Options - Types of residential care
Hiring In-Home Help - Tips for hiring professional help
AbleData - A federally-funded database listing hundreds of products for people with disabilities
Technology for Long-Term Care - Tools for assisting caregivers in all settings
MissionFamily Caregiver Alliance is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy. Who We Are Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, the alliance offers programs at national, state and local levels to support and sustain caregivers.National, State and Local Programs Uniting research, policy and practice, the alliance established the National Center on Caregiving to advance the development of high-quality, cost effective programs and policies for caregivers in every state in the country. The National Center on Caregiving sponsors the Family Care Navigator to help caregivers locate support services in their communities. Family Caregiver Alliance also oversees Link2Care, an Internet support and information system for clients of California's system of Caregiver Resource Centers and operates the Bay Area Caregiver Resource Center in the six-county San Francisco Bay Area. In that capacity, the alliance's staff social workers work closely with families caring for ill or elderly loved ones. Our services, education programs and publications are developed with their expressed needs in mind, to offer real support, essential information, and tools to manage the complex and demanding tasks of caregiving.