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When Your Parent With Alzheimer's Goes Wandering

A son shares the lessons he learned after his dad went missing

posted by Caroline Mayer, January 24, 2014 More by this author

Person wandering in the fog

Caroline Mayer is a consumer reporter who spent 25 years working for The Washington Post. Follow her on Twitter @consumermayer


Person wandering in the fog
Thinkstock
Some news stories make me shudder. These include what seem to be the growing number of reports of lost Alzheimer’s patients —  older men and women who’ve wandered by foot or car and are lost for hours, sometimes days.

You may recall last November’s tragic news story about 72-year-old Ronald Westbrook of Chickamauga, Ga., who was shot dead after he walked about three miles in the middle of the night and knocked on a stranger’s door.
 
The blog, A Place for Mom, reports that six in every 10 people with Alzheimer’s exhibit wandering behavior. And, it notes, the Alzheimer’s Association says that if wanderers are not found within 24 hours, “up to half will suffer serious injury or death.”
 
(MORE: How to Deal With Dementia-Related Wandering)

So you can understand why Washington Post reporter Tom Jackman was so concerned when his 78-year-old father with Alzheimer’s went missing in northern Virginia last October. Fortunately, his dad was found about 20 hours after disappearing.
 
Tom discovered some valuable lessons in the search for his father, which he wrote about in a touching Washington Post story and expanded on when I interviewed him recently.
 
As Tom learned, and any adult child of a parent with Alzheimer’s needs to know, technology only goes so far in aiding this type of search.
 
Next Avenue: Tell me about your dad.
 
Jackman: He spent most of his career as a spokesman for the airline industry and the American Automobile Association before retiring more than 10 years ago. Then he began working as a docent and information-desk guy at the Udvar-Hazy Center, the Smithsonian National Air and Space Museum annex near Dulles Airport. He had to stop doing that about two years ago, when he got lost coming home from the museum one day.
 
(MORE: For Caregivers, New Tracking Technology Offers Peace of Mind)

How is his health?
 
He was diagnosed with Alzheimer’s about two years ago but is in fine physical shape otherwise. As with many people with Alzheimer’s, his short-term memory is terrible, although his long-term memory is still reasonably good.
 
He lives with my mother, who is a couple of years younger and quite active around their town.
 
Until last October, the doctor said it was OK to allow Dad to continue to drive to the two places he visited regularly: A daily drive of about one mile to Starbucks and a Sunday drive of less than a mile to the church where he has long sung in the choir.

To our knowledge, he had never experienced any problems going back and forth between those two places until a Saturday morning in October.
 
(MORE: Help With Alzheimer’s: Caregiver Resources)

What happened that morning?
 
My mom went to meet some of her pals for a leisurely breakfast. Dad was asleep when she left; he typically goes on his daily Starbucks run around 11. Mom returned around 11:30 a.m., so she wasn’t concerned when Dad wasn’t home. But by 12:30, she began to be. At 1:30, she was extremely concerned and started calling me. Shortly before 2 p.m., she called the Fairfax County police.
 
What did the police do?
 
They conducted an all-out search with more than 60 officers. One officer was assigned to stay with my mother, to get information from her and to be around in case Dad called or showed up. A helicopter searched the air over the town where they live.
 
The fire and rescue department took down all of Dad’s medical information in case he was found in distress. Officers were dispatched to any place we could think he might have visited. The phone company was contacted to try to locate his cell phone — an older model which had no GPS device in it.
 
How did the search go?
 
Officers combed a wide area on foot and others were stationed in cars at key intersections, hoping to spot him driving by. A detective from the criminal investigations bureau was summoned in. He began trying, without success, to find out if Dad’s debit card was being used anywhere.
 
Another officer also tried to get the bank to help, but they could provide no information. Dad did not have an online bank account, so we couldn’t check to see if there were any recent transactions.
 
An officer showed up who had been reviewing surveillance tapes from the grocery next door to the Starbucks. After going through hours of footage, she thought she had an image of my father. Nope. Wasn’t him.
 
The police released the Missing Persons poster at 4:30 a.m., and the local TV news began broadcasting it at 5:00.
 
At around 7:30 a.m. on Sunday, an officer in Washington, D.C., found my father. His car had stalled outside a McDonald’s near the Capitol, about 25 miles from his home. Receipts in the car showed he had driven about 40 miles north to Baltimore, got gas, went to a McDonald’s there and then drove back to Washington. He had no memory of any of it. He was checked out at a hospital and released.

My dad will no longer drive.
 
I think that story is every child’s worst nightmare. What heartened me in your article was that you were willing to share the lessons you learned. What were some of those lessons?
 
For one thing, cell-phone locator technology is far from perfect. The phone company was quite certain that his phone was in a particular neighborhood. Two months later, my mother found the cell phone under a couch in their house. He’d never taken it with him. For older phones without GPS capability, like my dad’s, phones pinging off cell towers can still be in a radius of many miles around the towers.
 
What else did you learn?
 
Another lesson was that many banks simply do not have the capability to access customers’ records immediately on weekends, particularly smaller banks such as the one my dad uses. Even for the police.
 
Can technology help find people with Alzheimer’s who are wandering?
 
There are devices that can be used to track missing adults. But in Fairfax County there is a waiting list to obtain one, from a program called Project Lifesaver, which is available in nearly every jurisdiction in the Washington, D.C. area.
 
A Project Lifesaver client wears a wrist or ankle band emitting a silent tracking signal that can be used to find a patient when he or she goes missing. Already on file will be critical information such as the patient’s height and weight, a photograph and medical issues. The program has a 100 percent track record of locating wandering adults and the average Project Lifesaver recovery time for a missing person is around 30 minutes.
 
It would have helped us immensely if my dad had had a Project Lifesaver band.
 
After I wrote the article, a local group stepped up and donated several thousand dollars to Project Lifesaver in Fairfax County, which will be used to purchase more GPS equipment so more people can be enrolled. The newly elected sheriff has indicated he hopes to expand the program.
 
What advice would you give families who have loved ones with Alzheimer’s?
 
There are several things family members can — and should — do.
 
First, they should get their loved one a cell phone with GPS capability to help track them if they wander.
 
They should also sign up for online banking with their parent’s financial institution to be able to access the account and follow any transactions if he or she goes missing.
 
They should also sign up for Project Lifesaver or a similar program, if there is one.
 
And by all means, they should contact the local police and inform them that there is someone in your family who might some day wander.
 
Last — but not least — make sure to give your mom or dad an extra hug.
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